Oh man crohns sucks ass.....kind of literally. Mine progressed from diagnosis to cancer-destroyed colon in four years and I had to get it yoinked. I really hope modder's is much more mild!
sadly no it got worst i've been posting this else where
Hey everyone,
Sorry for the silence over the past few months. I've been updating my Discord with everything that's been going on, but I recently realized that not everyone checks Discord — so I wanted to post an update here as well.
It all started just before April, when I began experiencing severe stomach pain. At first, I didn’t think much of it, but it quickly worsened. I saw my doctor about two weeks later, and they initially thought it was constipation, so I was given laxatives and other treatments. Unfortunately, nothing worked, and my condition deteriorated. The pain became unbearable, and after two weeks, I went to the ER.
They ran a CT scan and suspected Crohn’s disease, but I had to wait a month for a colonoscopy to confirm it. Not long after that ER visit, I reached a point where I could barely eat or drink — everything I tried to consume just came right back up. After a few weeks of that, I went back to the ER.
This time, the CT scan showed that things had gotten much worse. What they originally thought was Crohn’s disease turned out to be colon cancer. I was admitted immediately and underwent emergency surgery, during which they removed my colon. Thankfully, they’re confident they got all of the cancer.
However, complications followed. When they reconnected what remained of my colon to my intestines, the connection didn’t hold, and I began leaking internally. Three days later, I was rushed into another surgery, this time for sepsis — and I nearly didn’t make it. They weren’t able to reconnect everything again, so I now have an ileostomy bag. This means my waste is redirected to an opening in my abdomen, where it exits into a bag.
Because of this, my body can no longer properly absorb nutrients from food. I’ve become severely malnourished and have lost most of my muscle mass. On top of that, I developed an infection in the surgical area, which required the doctors to open half of the staples along my abdomen (the incision runs from my chest down to my pelvis). The wound is being kept open so it can be cleaned, packed, and treated daily with antibiotics. A nurse now visits my home every day to care for it.
I spent over two weeks in the hospital and was only just discharged recently. I’m still in a lot of pain and dealing with a long recovery ahead. The ileostomy bag is expected to stay for at least 3–6 months — and there’s a chance it may be permanent.
That said, I’m finally home and, despite everything, looking forward to getting back to work on my mods as soon as I’m physically able. I truly appreciate everyone who’s been patiently waiting for updates. A huge thank-you as well to those of you who stayed subscribed or donated during my absence — your support has meant more than I can say and has helped me immensely during this difficult time.
Thank you again. I hope to be back to creating and updating soon. ❤